Summary
Alleviate Pain Data Hub hit a major milestone this week. We successfully facilitated our first curated data set being available within our new Pain Hub.
Alleviate Pain Data Hub hit a major milestone this week. We successfully facilitated our first curated data set being available within our new Pain Hub.
This milestone was achieved with University of Nottingham collaborators using the Genetics of Osteoarthritis and Lifestyle (GOAL) study data set. GOAL is a historical secondary-care cohort of people living with osteoarthritis (OA). More information describing this cohort and how approved researchers can access it is available on the HDR UK Innovation Gateway.
Professor Ana Valdes had this to say about GOAL:
“GOAL is a “historical” cohort, it was all recruited over 15 years ago, and it is now closed. We are simply taking advantage of data that was generated as part of projects from the 2000’s that can still support research today”
Professor Ana Valdes
Our team of data engineering experts across the Universities of Nottingham and Dundee have completed data standardisation on the first dataset to be added to Alleviate. This means the data has been transformed into a usable format that can be found and accessed in a secure way by researchers through the HDRUK Cohort Discovery Tool.
This is a significant step forward for the Alleviate Pain Data Hub project. The GOAL data set is not only the first Pain data set to be made available through the Alleviate Pain Hub but it’s the first non-COVID data set available on the HDR UK Cohort Discovery Tool. This marks an important diversification of the data available within the Cohort Discovery Tool for the benefit of the UK-wide researcher community and beyond. This dataset will be the first of many pain-specific data sets that the Alleviate Pain Data Hub has been created to deliver to support pain researchers, clinicians, and ultimately people who live with pain.
“Having the GOAL data incorporated in the Cohort Discovery Tool is a fantastic milestone for the Alleviate project. It is the fruition of a lot of work behind the scenes by the Alleviate team and, importantly, our project partners. This is the first of many datasets to be made available and we are working with partners across the UK to add more in the coming weeks and months.”
Dr Christian Cole, Alleviate Pain Hub Director
Alleviate is The Advanced Pain Discovery Platform (APDP) Data Hub. It is one of nine Health Data Research UK national data hubs and will transform UK pain datasets to be Findable, Accessible, Interoperable and Reusable (FAIR) and is providing expert data engineering, to enhance responsible, timely and trustworthy analysis by researchers and innovators, with the aim to improve lives. The Alleviate Data Hub is part of the £23 million Advanced Pain Discovery Platform consortium funded by UKRI Strategic Priorities Fund and Versus Arthritis, with additional support from Eli Lilly and the Medical Research Foundation. The APDP and Alleviate projects were developed and run with the support of people with lived experience of pain. Their voice is at the core of improving research data access to accelerate advances in research which will ultimately improve patient outcomes.
More information is available on the Alleviate Pain Data Hub website, or subscribe to our newsletter for regular updates.
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